23andMe Bankruptcy: What Happens to Your Data?
The popular DNA testing company, 23andMe, filed for Chapter 11 bankruptcy on March 24th, leaving millions of users questioning the fate of their genetic information. This unexpected development raises serious privacy concerns, as 23andMe's extensive database is now up for sale in a court-supervised process.
Data Privacy Concerns
Experts like Jason Kelley from the Electronic Frontier Foundation highlight the unique sensitivity of genetic data. Unlike other personal information, DNA is immutable, making its potential misuse particularly alarming. While 23andMe states any buyer "will be required to comply with applicable law," the lack of robust federal regulations governing genetic data held by tech companies leaves room for concern. A new owner might have different policies regarding data sharing with law enforcement or for commercial purposes.
Taking Action
California Attorney General Rob Bonta urges 23andMe users to exercise their rights under state privacy laws (GIPA and CCPA) and delete their data. This involves logging into your account, navigating to settings, and initiating the deletion process. Downloading your data before deletion is advisable. Experts strongly recommend taking this step to protect your genetic privacy.
The Future of 23andMe
The sale of 23andMe is uncertain, but its outcome will significantly impact user privacy. The company's history, including a 2023 data breach affecting 6.9 million users, further emphasizes the urgency for users to proactively manage their genetic information. This situation underscores the need for stronger federal regulations to protect sensitive genetic data.
Don't Delay
Don't wait! Protect your genetic information by downloading your data from 23andMe and then deleting your account. Your DNA is irreplaceable, taking control now is crucial.